Tuesday, March 29, 2005

26) #6 is in the past - I see the morning light

Sorry its been so long since my last post. Frankly it gets kind of boring saying the same things: nauseaus, weak, bone pain, can't sleep, can't poop, blah, blah, blah.

This treatment did go quite a bit better than we had anticipated though. My WBC was pretty good (9.9) going into chemo. I had been getting a rash during my last down time which ended up really flaring up right before chemo. Patty (my NP) thought that there could be 2 things happening a) a food allergy (not surprised as I have had this before and b) maybe shingles. She referred me to a dermatologist but now that I'm feeling well enough to make that appointment my rashes are all gone. Isn't that how it works?

I've missed a lot of work this treatment but I needed to for the better good of my treatment. I got a good solid 6 hours of sleep last night with the help of ativan & ambien. Hopefully my bone pain will be all but gone throughout the day and I can actually be a productive part of my employment.

I have an appointment on Thursday for a PET/CT scan to re-stage my cancer. I guess its the latest technology that combines a PET scan and a CT scan to reduce the time in half. I have a feeling its going to be a long week until thursday. Then we find out the results the following Tuesday - DDay! Thank god I'll have the taxes to do that weekend to keep my mind off of the wait. I'll keep you all posted as I know more info.

For now I'm just trying to be me the best I remember :)

11 comments:

Maureen McHugh said...

Waiting for tet results is the hardest thing. Here's hoping for good ones, Heather! And lots of nights of good sleep!

Stephanie said...

I have a PET/CT on Thursday. Here is to the awful, dreadful waiting. Praying for clean scans!

Unknown said...

I have ben reading and praying for both of you since I ran across this blog as I was surfing one day. I know that blessings are multiplying to you!

Anonymous said...

Thank you so much Rene for that beautiful posting. You have been the most amazing support to Heather's healing. Your patience, your great sense of humor with Heather, and your ability to always be there is remarkable. You have been a great husband and partner to Heather, and this has all been the key to her healig.
Heather, you have been a most remarkable trooper in all this. You have shown everyone just how tough and strong you are.
You're almost through with this life chaning ordeal and you and Rene are coming out on top.
I love you.
Aunt Joan

Anonymous said...

Thank you so much Rene for that beautiful posting. You have been the most amazing support to Heather's healing. Your patience, your great sense of humor with Heather, and your ability to always be there is remarkable. You have been a great husband and partner to Heather, and this has all been the key to her healig.
Heather, you have been a most remarkable trooper in all this. You have shown everyone just how tough and strong you are.
You're almost through with this life chaning ordeal and you and Rene are coming out on top.
I love you.
Aunt Joan

Anonymous said...

Hey Heather,
Finally, I'm writing...I had to be coached on how to do this, with my limited technical know-how, and my schedule these days it was daunting to sit down and figure out how to do this...I go into panic mode...sounds stupid no?...Well now that I found out it's this simple to post something...It is stupid. :)...Anyway, I've been keeping track of you thru mama mackin....You have been and are being so brave through all of this...you amaze me that you are able to work while going thru this all. You are in the home stretch now...You've climbed the hill and your on your way down...It's coasting from here on. I've been praying for you daily and will continue to do so.....even natalie prays for you....even my mom prays for you...but you already know that...Dont you just love those little "heavenly" things she sends you...they are all meant for your best interest...On June 5, it will be 10 years since my diagnosis, and I'm still around....and that is the day of the marathon...at year 11 we will be celebrating together again...and every year after that...You have a magnificent support group of people who love you and Rene...Your mom was a tremendous support to me during my years of chemo treatment also...She was a rock to me and still is...I still have my down days and my up days...But mostly up days...My cancer journey has taught me to always look for the blessings in the darkness....I continue to learn from my experience even 10 years after...My mantra for myself these days are kindness, compassion and patience, for myself first and for others....This would be a great mantra for yourself at this time also...I know what it's like anticipating and waiting for test results, I have been there many times...and however the results turn out, the stress and the worry never change the results, it just makes the waiting more agonizing...So, instead, do something fun for yourself and Rene, celebrate having the scan and having made it this far...and the magnificence of who you are.. know you are loved and I am sending white light and healing energy to you...with love and gratitude for knowing you...Marietta

Anonymous said...

Hi Heather,
I have been meaning to post a comment, but have been too chicken. I have been reading every week diligently, keeping up on your progress. I think you have shown amazing courage and the support from your husband and family is inspirational. Keep your spirits up and think positive. I will keep you in my thoughts!
Love,
Telzey

Anonymous said...

Hi Heather,
I have been meaning to post a comment, but have been too chicken. I have been reading every week diligently, keeping up on your progress. I think you have shown amazing courage and the support from your husband and family is inspirational. Keep your spirits up and think positive. I will keep you in my thoughts!
Love,
Telzey

Anonymous said...

Hey Heather - I had this vision last night of the marathon, rounding the corner at mile 20 with 6 to go. That's where I feel you are in this whole process. When I went onto the website for the Rock 'n Roll Marathon, I saw they were interviewing Cheerleaders for the event. Well, it's about mile 20 that you REALLY NEED the cheerleaders! Yeah, it's about mile 20 that you're almost there but you're getting tired of the whole damn thing and ready for it to be over. So here it is Heather: GO HEATHER GO, YOU CAN DO IT, JUST A FEW MORE 'MILES', YEAH!!!!! (I'm jumping up and down with pom poms waving) You are my amazing girl. I invite ALL the cheerleaders out there to come out for these last few 'miles' . Love you more than you'll ever know!

Anonymous said...

This one's for Rene.......just wanted you to know, for whatever it's worth, you've pretty much proven yourself, in my eyes, and have entered a special place in my heart that will never change. Thank you for being Heather's best friend and major support. Only you can bring her from a funk to giggling and, at times when it doesn't work, have practiced amazing patience. This isn't easy for either of you and you have both shown incredible courage and stamina - it's almost over!

Anonymous said...

Hey heather, how are you doing? You need support! Lots of support! The way I see this is that you have gone through 6 treatments and only 2 left. You have made it this far and have been strong the entire way. I believe in you! You and holly have always been my idol since I was little. I believe that you have the power to suceed and get through this with all the colors of the rainbow. Instead of looking at it with the glass half empty think of it half full. More or less like YES ONLY 2 MORE! Then oh gosh not 2 more treatments. Always look at the positive outlook and you will have alot less stress in your life. Trust me it makes it easyer. I hope you feel better and look at rainbows they are pretty. Lol

XOXO
Natalie